Latest Update: Friday, January, 16th 2009

A bill to amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry. 10/8/2008--Public Law.    (There are 2 other summaries) ALS Registry Act - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), if scientifically advisable, to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data to develop a population-based registry of cases. Authorizes the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry, which may review information and make recommendations to the Secretary concerning: (1) the development and [...]

show full description
Latest Actions
  • 10/08/2008 - Became Public Law No: 110-373.
  • 10/08/2008 - Signed by President.
  • 09/29/2008 - Presented to President.
  • 09/26/2008 - Considered as unfinished business. (consideration: CR H10042-10043)
  • 09/26/2008 - On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650). (text: CR 9/25/2008 H9916)

show all actions